Our Story

Spina bifida and hydrocephalus Disability Foundation (SBHD) is a Non-profit organization, which was registered in Tanzania to advocate for the quality of life and the rights of children with Spina Bifida and Hydrocephalus (SBH) disability, known in Swahili as “Kichwa Kikubwa na Mgongo Wazi”.

Spina bifida is a term for a range of defects in the development of the infant’s spine and immediate vicinity. It may be concealed (occulta), usually having little effect in early years; or it may be visible as a lump on the back (or neck), containing spinal fluid (meningocele), or both spinal fluid and spinal cord

Hydrocephalus is a condition where the fluid that normally flows within the head and the spinal cord gets blocked at some point or is not adequately absorbed in the body. Pressure then builds up and causes a swelling of the head and often-considerable internal damage.

Our Vision

Is to have “Improved lives for people/children With Spina Bifida and Hydrocephalus (SBH) disabilities”. This is because we believe there is a possibility to raise the living standards of the families of persons with Spina Bifida and Hydrocephalus.

Our Mission

Is to raise awareness and spread public education on children, Youth and women with Spina Bifida and Hydrocephalus (SBH) on symptoms, early intervention, care and prevention. To influence and advocate for the rights and services of persons/children with Spina Bifida and Hydrocephalus to be fully engaged and fully recognized in all social and economic services.

Accountability

We take responsibility for our actions, ensuring that our resources are used efficiently to achieve measurable results for the children we serve.

Ambition

We set high goals and strive for continual improvement in our services and solutions for children with Spina Bifida and Hydrocephalus.

Collaboration

We value diversity and work together with partners to enhance our impact and effectiveness in supporting children and their families.

Integrity

We aspire to live to the highest standards of personal honesty behavior; never compromise our reputation and always act in the best interests of children with disability on spinal bifida and hydrocephalus.